Steam group for disabled gamers and chronic pain.

  Hello, I'm planning to start a new steam group for gamers suffering from chronic pain or who have a disability. I myself am disabled and am suffering from chronic pain. You can read my story here if you are interested: http://tehl0ki.blogspot.com/2011/03/my-story.html

Please let me know if you are interested in joining but only let me know if you are serious about it. I intend to keep quality over quantity members and this is going to be a relatively exclusive safe place. I want members to feel comfortable with one another and able to discuss our issues among friends.

You are also welcome to join if you at one time suffered from chronic intractable pain or a disability but no longer do. Again while this group is focused on gamers, you are more than welcome to join if you have never played a video game in your life.

Please refer any friends or relatives you know suffering from chronic pain or a disability. The purpose of this group is to simply provide support. While it's a steam group and game focused, as I said, being a gamer is not a requirement to join.

If you are interested in joining but don't have steam and need help, feel free to send me a private message and I will guide you through the process.

You can contact me with a private message, or my profile is
http://steamcommunity.com/id/teh_L0ki/

Good luck, and hope you find some people.

This is an awesome idea. Other than being fat and ugly, I don't qualify, but I occasionally daydream about how I might handle the things I care about in life if I suffered some sort of impediment. I hope this does well. Best of luck.

Yeah good luck, headaches are the worst can't imagine having them to the extreme.

That's a really good thing. Good luck with this.

 
great idea as far as the steam group.
 
not to go off-topic, but i read through your blog.  i wish you the best of luck in recovering from your headaches, which i truly believe can and will happen for you, however, keep in mind that just because MNHI and joel saper say that they are the best, doesn't mean they are the alpha and omega of head pain treatment.  don't give up if you don't start finding pain relief in the coming months.  there are many, many great neurology and pain centers in this country, and there is no reason for a young person to spend their whole life in pain.

"  great idea as far as the steam group. not to go off-topic, but i read through your blog.  i wish you the best of luck in recovering from your headaches, which i truly believe can and will happen for you, however, keep in mind that just because MNHI and joel saper say that they are the best, doesn't mean they are the alpha and omega of head pain treatment.  don't give up if you don't start finding pain relief in the coming months.  there are many, many great neurology and pain centers in this country, and there is no reason for a young person to spend their whole life in pain. "

" Unfortunately I'm not getting much of a response from people :(    I guess this is just too niche a group. I'm planning to wait and see if my appeal is denied on GameSpot and if it is I'm going to email a couple of gamesites just to let them know my experience to put the word out there about GameSpots draconian methods.  (Let me know if you think this is a bad idea).   But no other website I've posted this to has had an issue with me advertising a group specifically designed to help people with no financial motive whatsoever. "

Well, it's only been a day or so, L0ki, maybe you'll get some people interested later on.
 
I followed ya for future reference - I'd join ya but I don't know if I'd have anything to contribute to your cause.

I can sympathize with you on this issue. I am a T4 paraplegic and have been so for 23 years. I started to get very similar headaches as of around 7-8 years ago. I had a few appointments with a local neurologist who had me get an MRI, and found that I have some sort of cyst near my spinal cord injury. I was told this is most likely the cause of the headaches that I receive. I get them very randomly, case in point: I sometimes get them in the late evening for an entire week every evening of that week or sometimes once or twice a month, when they do hit, they hit like a freight train.